My Rebif Routine
David's video biography
I'm not sure if anything has been truly "routine" since I was diagnosed with MS, but I continue to strive to make it "routine" in every aspect of my life. My mother used say, "Be careful what you ask for." And like most of her advice, I never listened to it until she told me a second or third time.
Just before I was diagnosed with MS, I remember telling everyone at work that I wished I could just take some time off, relax and have someone wait on me hand and foot—that thought seemed like heaven. A short time later I was in the hospital taking time off for about four weeks. I guess you could call that "relaxing"—with hospital staff taking care of my needs. Holy cow, be careful what you ask for because it may come true much differently than expected!
These days, I simply look forward to a nice, comfortable daily routine. On a typical day, I get up in the morning, eat a bowl of raisin flakes with skim milk, exercise (three times a week), and head off to work for a busy day. The weekends vary, but not by much. I sometimes spice things up with various activities, gatherings and occasional travel, but find that my daily routine is suiting me quite well. I have often said that balance is a real compliment to the way I handle my issues and challenges with MS.
Taking injections has become part of my routine. The medication is now part of my life and staying compliant is very important to me. I'm proud to announce that I haven't missed a single dose so far. I do what I can to help with my relapsing MS and staying compliant is an important part of that plan.
I call Monday, Wednesday, and Friday "shot nights," and know that before I go to bed on those nights I'll fulfill that day's routine by taking my injection. Occasionally when I'm traveling I switch the nights to Tuesday, Thursday, and Saturday, (making sure to keep the injections 48 hours apart) but only because that works best for my schedule. Even my friends and family refer to those nights as "shot nights" since they've been part of my routine for a while now. I've laughed and commented that almost every friend I have has seen my "bum" at one time or another when helping me with my injections.
Generally, just after I brush my teeth getting ready for bed, I set out my syringe and alcohol swab on the counter and watch the late news. Once the newscast is over, I prepare for the injection and then make it happen—a routine I've grown accustomed to over time. It wasn't easy in the beginning and sometimes I grimace at the thought, but I always remember that I'm doing what's best for me in regards to my MS.
Routines may seem boring to some, but for me it has brought peace of mind and has likely helped me remain compliant with my injections.