1-on-1 support with MS LifeLines Ambassadors

Sometimes it helps to talk to someone who understands what it's like living with relapsing MS and taking Rebif®
(interferon beta-1a). We are a group of patients and care partners who are here to help you in a number of ways. For example:

  • If you are new to Rebif treatment or considering Rebif, you can speak 1-on-1 with an MS LifeLines Ambassador
  • You can share personal, firsthand experiences to learn all you can about treating MS
  • Find inspiration and get practical MS tips

Have a 1-on-1 conversation with us through the Peer Connection Program. Just call 1-866-783-5189.

 

Learn more at MS LifeLines
1-on-1 conversation through peer connection program

Shiela's story: One call took away the worry

Shiela’s Story: One call took away the worry

After my diagnosis, I needed to reserve my energy for the important things—traveling with my husband and my daughter, attending her softball games, or just sitting across the table scrapbooking. That's me in a nutshell. I'm all about my family.

It's a challenge to say "No" without feeling guilty. But I've actually found asking for help to be a greater challenge.

Almost a year and a half ago, my co-pay was going up. In some way, I thought I had failed. If I couldn't make that payment and I couldn't get the medication, what was going to happen to me? When I talked to an MS LifeLines Financial Support Specialist, hearing her calming, soothing voice—that was a big deal to me.

I didn't have to fight the insurance company. Or make call after call. They did it. And then they called me back and said, "We have it all set up; you don't have to worry." It was wonderful.

I think it's important not to feel ashamed. When I talk to people, I say, if you need help, you call and get help. They'll do the hard work for you. All you have to do is call.

Shiela R.Crafty scrapbooker, MS LifeLines Ambassador, living with relapsing MS

This story reflects the personal experience of one person. Results and experiences vary from patient to patient.

Meet some MS LifeLines Ambassadors

 

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Meet some MS LifeLines Ambassadors
 
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Important Safety Information and Indication

Important Safety Information

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Before beginning treatment, you should discuss the potential benefits and risks associated with Rebif with your healthcare provider.

Rebif can cause serious side effects. Tell your healthcare provider right away if you have any of the symptoms listed below while taking Rebif.

  • Behavioral health problems, including depression and suicidal thoughts. You may have mood problems including depression (feeling hopeless or feeling bad about yourself), and thoughts of hurting yourself or suicide
  • Liver problems or worsening of liver problems, including liver failure. Symptoms may include nausea, loss of appetite, tiredness, dark colored urine and pale stools, yellowing of your skin or the white part of your eye, bleeding more easily than normal, confusion, and sleepiness. During your treatment with Rebif you will need to see your healthcare provider regularly and have regular blood tests to check for side effects
  • Serious allergic and skin reactions. Symptoms may include itching, swelling of your face, eyes, lips, tongue or throat, trouble breathing, anxiousness, feeling faint, skin rash, hives, sores in your mouth, or skin blisters and peels
  • Injection site problems. Symptoms at the injection site may include redness, pain, swelling, color changes (blue or black), and drainage of fluid
  • Blood problems. Rebif can affect your bone marrow and cause low red and white blood cell and platelet counts. In some people, these blood cell counts may fall to dangerously low levels. If your blood cell counts become very low, you can get infections and problems with bleeding and bruising. Your healthcare provider may ask you to have regular blood tests to check for blood problems
  • Seizures. Some people have had seizures while taking Rebif

Rebif will not cure your MS but may decrease the number of flare-ups of the disease and slow the occurrence of some of the physical disability that is common in people with MS.

Do not take Rebif if you are allergic to interferon beta, human albumin, or any of the ingredients in Rebif.

Before you take Rebif, tell your healthcare provider if you have or have had any of the following conditions:

  • mental illness, including depression and suicidal behavior
  • liver problems, bleeding problems or blood clots, low blood cell counts, seizures (epilepsy), or thyroid problems
  • you drink alcohol
  • you are pregnant or plan to become pregnant. It is not known if Rebif will harm your unborn baby. Tell your healthcare provider if you become pregnant during your treatment with Rebif
  • you are breastfeeding or plan to breastfeed. It is not known if Rebif passes into your breast milk. You and your healthcare provider should decide if you will use Rebif or breastfeed. You should not do both

Tell your healthcare provider about all medicines you take, including prescription and over-the-counter medicines, vitamins and herbal supplements.

The most common side effects of Rebif include:

  • flu-like symptoms. You may have flu-like symptoms when you first start taking Rebif. You may be able to manage these flu-like symptoms by taking over-the-counter pain and fever reducers. For many people, these symptoms lessen or go away over time. Symptoms may include muscle aches, fever, tiredness, and chills
  • stomach pain
  • change in liver blood tests

Tell your healthcare provider if you have any side effect that bothers you or that does not go away.

These are not all the possible side effects of Rebif. For more information, ask your healthcare provider or pharmacist.

Call your doctor for medical advice about side effects.

You are encouraged to report negative side effects of prescription drugs to the FDA. Visit www.fda.gov/medwatch or call 1-800-FDA-1088.

Refer to the Instructions for Use that comes with the Rebif® Rebidose® (interferon beta-1a) autoinjector.

Indication

Rebif is used to treat relapsing forms of MS to decrease the frequency of relapses and delay the occurrence of some of the physical disability that is common in people with MS.